Monthly Archives: August 2013

Just ticking along…

Hi all, just wanted to post a quick update. Things are going along. We’re working though what this diagnosis means for Obi’s future and the whole family.

I’m still reeling, there’s no question, but Obi really is the cutest little thing. She’s almost 8 months and very petit – just under 13 lbs. She’s still wearing 0-3 clothes and hasn’t yet me all her milestones, but with some OT she’s catching up a little bit at a time, every day.

I’m not sure what else you’d like to know about Obi, her condition or what it’s like to go through all this and find yourself with a perfect little peach with some not-so-perfect genes. Let me know if you have any questions. I’m an open book – ask away. Don’t be shy about asking the hard stuff. I’m happy to have others learn from my journey.

Wonder what an-almost-8-month-old-who-wears-0-3-clothes looks like? A cutie-pie – that’s what. This is her first pair of jeans!



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